On June 14
th Jaida and I had a girls night out together. We stayed at the Mt. Washington Hospital so that she could have her sleep study that we have been anticipating for some time now! We arrived at the hospital at 8:30. They checked us in and then began preparing her for the night. The plan was for her to start off without oxygen to see if she still needed it!
After they hooked her up to 50 million leads,
cannula, other nasal insert, pulse
oximeter, etc.. the restless night began.
Jaida was a good sport and was happy even though she was being bothered and had some uncomfortable belts and wires everywhere, not to mention the sweet head wrap they did!
A peak at the electrode board!
Sheish!
Well it was a rough night. She was tossing and turning all night. The nurses came in and out what seemed like every ten minutes. I can't believe they think that it should resemble any other night. Are you kidding me? After only like and hour of her off
oxygen they came
in and turned on the oxygen and said that she needed it. I was so discouraged. I have been hoping that this would tell us she was over her apnea.. NOPE! It was a rough morning, they woke us up at 5 Am to tell us time was up and to go home. I was so sad for my baby girl. I felt horrible, had no sleep and was emotional to top it off! Hopefully she will
be able to get off of it soon. She is back on oxygen as long as she is asleep... which is pretty much all day long. They tell you to not get your hopes up, but it is so hard not to. We just want what is best for
Jaida and can't wait for the day when she is off FOR GOOD!
On June 14th Jaida and I had a girls night out together. We stayed at the Mt. Washington Hospital so that she could have her sleep study that we have been anticipating for some time now! We arrived at the hospital at 8:30. They checked us in and then began preparing her for the night. The plan was for her to start off without oxygen to see if she still needed it!
After they hooked her up to 50 million leads, cannula, other nasal insert, pulse oximeter, etc.. the restless night began. Jaida was a good sport and was happy even though she was being bothered and had some uncomfortable belts and wires everywhere, not to mention the sweet head wrap they did! 
A peak at the electrode board! Sheish!
Well it was a rough night. She was tossing and turning all night. The nurses came in and out what seemed like every ten minutes. I can't believe they think that it should resemble any other night. Are you kidding me? After only like and hour of her off oxygen they came in and turned on the oxygen and said that she needed it. I was so discouraged. I have been hoping that this would tell us she was over her apnea.. NOPE! It was a rough morning, they woke us up at 5 Am to tell us time was up and to go home. I was so sad for my baby girl. I felt horrible, had no sleep and was emotional to top it off! Hopefully she will be able to get off of it soon. She is back on oxygen as long as she is asleep... which is pretty much all day long. They tell you to not get your hopes up, but it is so hard not to. We just want what is best for Jaida and can't wait for the day when she is off FOR GOOD!
2 comments:
I can't wait either. Oh, poor Jaida, that looks so terrible being hooked up to all of those things. She is such a sport. Love her.
Hang in there Mikelle! It really is a slow process, and getting your hopes is so normal. The fact that she is off during the day is great step in the right direction...it is going to come. Blake was restless with his sleep study and he didn't have as much as she did...can't blame the poor babay for not being able to rest. They are nuts saying it would be like any other night.
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